"I first became involved with advocacy when I saw my parents successfully advocate for improved care at the children’s hospital, from the setup of the home IV program, to the doubling of the funding at both South Australian CF clinics. I learnt from a young age that we can inspire change and that we all have a right to the best available health care. It’s lead to me becoming extremely passionate about health equality, through timely access to medications and the highest level of hospital care. 

In 2013 myself and several passionate members of the CF community formed YesToKalydeco, after we saw our friends overseas gain access whilst the negotiations stalled in Australia. This was the first of four campaigns for these life-changing medications, which have now all successfully been listed on the PBS, significantly improving both the life expectancy and the quality of life for those living with CF in Australia. The advocacy does not stop here though, we still need better treatments, access to supports, and ultimately, a cure. I’m particularly looking forward to working with the CF community as our needs evolve and become more diverse. I’m excited to be progressing from the community-based advocacy to working for CF Together, with resources and a team of highly skilled people, with the common goal of leaving no one behind as we drive progress for the CF community in Australia." - Genevieve Handley

Genevieve Handley https://www.linkedin.com/in/genevieve-handley-188640310/
CF Together https://www.cftogether.org.au/

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