The Patient Voice Podcast
Our aim at Patient Voice Initiative is to ensure patient voices are seen, heard and valued in the Australian health system. But what is the patient voice and why is it important?Join us as we explore real experiences of health and healthcare through the people who most depend on it and how these stories can help us build better care for all.The podcast is hosted by the Patient Voice Initiative Chair and patient advocate, Jessica Bean, which means it is an opportunity to hear patients in discussion with another patient, rather than responding to questions from someone who does not live with the daily experience of being a patient.
Episodes
12 episodes
Louise Grant
Louise is the mother of Isabelle, a 3-year old who lives with a rare condition called Severe Combined Immune Deficiency ("SCID" or the "Bubble Baby condition"). SCID babies are born without a functioning immune system and cannot fight off even ...
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Season 2
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Episode 6
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48:31
Clare Devine
Claire Devine is a best selling artist and emerging ecommerce/personal branding authority. Her works are collected worldwide and she imbues business and art with heartfelt candour, compassion and kindness.The Granddaughter of celebrated Fre...
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Season 2
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Episode 5
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46:19
Geoff Nyssen
Geoff is a dad, husband, blogger, public speaker and an active patient advocate. Since being diagnosed in 2014 with the terminal blood cancer multiple myeloma, Geoff uses this adversity as a means to lead by example in helping others to b...
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Season 2
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Episode 4
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37:28
Ashley Ng
Ashley is a diabetes advocate, researcher and healthcare professional. Through her lived experience, she's developed a passion for driving patient-centred healthcare service design and ensuring the lived experience voice is involved from concep...
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Season 2
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Episode 3
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45:20
Kate Gough
Kate Gough is a passionate advocate and parent, dedicated to raising awareness and heralding improvement for those who are born with Spinal Muscular Atrophy (SMA) and their families.As the mother of baby Oakley, who was diagnosed with SMA a...
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Season 2
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Episode 2
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33:20
Clare Stuart
Clare Stuart is the Policy and Advocacy Manager for the Mito Foundation, advocating for improvements to healthcare, disability and social support for people living with mito.She holds a Masters in Public Health and has contributed to pol...
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Season 2
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Episode 1
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40:04
How living with bowel cancer drove Nicole's advocacy
Nicole is a patient advocate and health consultant. When she was diagnosed with advanced bowel cancer in March 2017, she was told she would likely die within two years.Nicole then sought a second opinion, and found...
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Season 1
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Episode 6
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58:09
Tanya Hall - The reality of living with heart disease
Tanya is the CEO and founder of Hearts4Heart, which she founded in 2011 through her own experience of living with heart disease.Hearts4Heart is a national organisation supporting educating and advocating for patien...
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Season 1
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Episode 5
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32:00
Agnes Nsofwa and her advocacy for sickle cell patients
After Agnes' daughter was diagnosed with sickle cell disease at 14 months old, she learned everything she could and soon discovered the limited treatment options that patients had access to.Since then, she's become...
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Season 1
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Episode 4
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49:12
Loss, lessons, and a lifelong legacy - Rachael Casella's story
With Rare Disease Day coming up on the 28th of February, The Patient Voice Podcast is proud to share Rachael Casella’s story. Rachael is a campaigner and activist for genetic carrier screening, IVF education, and r...
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Season 1
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Episode 3
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47:38
